Meet the Crew: Tim

He is formally known as the “Shipping Lord” here at HQ. Tim, however is an extremely humble individual.

A true entrepreneur at heart, TinySuperheroes is lucky to have Tim on our Crew!

Tim has been around for quite some time, actually. He embarked on his TinySuperheroes career by doing some part-time work while he was at school to become an engineer. Now, we just can’t get rid of him! 😉

If you have ever completed a monthly mission, then you can thank Tim. He ships out thousands of patches to our TinySuperheroes every month! He also ships soooo many of our capes. This is no easy task, believe us.

“I try to get them out as quickly as possible, I swear! It feels really good to know that every cape or patch that I send out has a direct impact on every TinySuperhero. I love imagining the smiling happy faces from the kiddos and parents that receive what I send out. It really lifts my mood and makes me feel good knowing that I’m putting smiles on peoples faces!” -Tim

Known for his hard-work, creative ideas and positive attitude to help in any way, we are excited to get Tim out from behind the scenes and brag about how much more efficient and magical HQ is with him!

Sometimes, Tim is so quiet you would never know he was even at HQ, but at other times you can find Tim singing loud and proud to some music in his headphones.

“I am super passionate about music. I love that something so small like a song or an instrument can change your mood instantly. There is something so special about it that I love so much! I also absolutely love finding new music!” -Tim

Here is what a few of the crew have to say about Tim…

“Tim makes the office a happier place! I love his ability to make everyone laugh. He is such a hard worker and is always willing to help and is the KINDEST person on the planet.” -Kenzie

“Tim is such a great part of the crew. He is cheerful, hardworking and always willing to lend a hand to anyone that needs help.” -Ben (Volunteer who pretends to work at HQ.)

“Tim is a joy to have around. He is always willing to do whatever is needed to get the job done. This outlook and his positive demeanor definitely makes HQ a better place.” -Joe

While Tim may seem great… He does have a kryptonite!

“For sure Oranges. I don’t know why. I can’t really explain it, but they give off that weird, terrible orange pungent citrus smell. It absolutely repulses me! It is for sure my weakness. I don’t think there is anything more in the world that I despise than the smell of oranges.” -Tim

We love you, Tim! Thank you for everything you do for TinySuperheroes.

Frequently Asked Questions

TinySuperheroes Rise Up

$50 for a Lifetime of Value

7 years ago, TinySuperheroes began in Robyn’s kitchen. Back then, Robyn was sewing every single cape herself. The making of a cape cost her $30. A LOT has changed in the last 7 years (not just inflation.) There was no Patches Program, no Angel Squad, no support group, no HQ and no other employees. Costs have gone up, but we are also providing much more than a cape. Because of this, we are raising the costs of sponsoring a cape from $30 to $50.  

This one time ask of $50 provides a lifetime of value for your TinySuperhero. 

TinySuperheroes is changing the way the world sees disability and illness. We want to be part of a child’s journey from the very beginning. As soon as they are diagnosed, we want their official cape to show up on their doorstep as a reminder that they are extraordinary. The cape is a universal symbol for courage, strength and hope, but the cape is just the beginning of the journey. 

To actually make an impact, we need to be in it for the long-haul, and that is exactly what we are doing with the following programs. Our hopes are that you find great value in embarking on this journey of a lifetime with us. 

  • The Patches Program: The Patches Program not only helps thousands of TinySuperheroes build confidence, but it also empowers the children and their families to take initiative and make an impact in their community. This is drastically different from so many other initiatives that help because we offer a hand-up to our families instead of a hand-out, because we know how incredibly strong our community is.  
  • Support group for the parents: Too often parents are left to scramble alone. With a support group of about 30,000 moms and a 90% activity rate every month, we aim to be there for the parents when things get hard. We have seen moms lose so much — including their friends, family and identity. That is why we are banding together to say that you are not alone. It is ok to feel overwhelmed by all of it because what you are facing, in our opinion, is the most difficult thing a person will ever have to go through. 
  • The Angel Squad: We want to be there for our families until the very end. Parents are not meant to lose their children. They are not supposed to watch them struggle for their lives. That is why we built the Angel Squad, a very special group where we remember the TinySuperheroes who have passed, sending notes and a gift of remembrance on every single anniversary of their death. 

By being there for our Squad through their whole journey, by impacting their community, and by reaching as many people as possible, we can feasibly change the way the world sees disability and illness. 

$50 sponsors your own cape. This is all we ask for the journey of a lifetime with us. Costs of our Patches Program, support group, and Angel Squad are built into this initial $50 sponsorship for your cape. Any dollar amount raised over that $50 goes directly to help other children get a cape as well. We recognize that some families are capable of asking more of their communities than others. That is why we are based on a pay-it-forward model. About 30% of cape campaigns will raise money, but this 30% raises enough to fund 100% of the capes! All we ask is that you share your campaign, because by just sharing you are helping us to raise awareness for how we are going to change the world. 

If I raise more than $50 during my Cape Campaign, can that money go towards buying Patches?

“If I raise more than $50 during my Cape Campaign, can that money go towards buying Patches?”

This is a totally valid question! First off, let me tell that this question makes us happy because it means that you are invested in TinySuperheroes and find value in our Patches Program!

However, the short answer to this is no. But wait! Let me give you a little bit of background information about why.

The way TinySuperheroes is able to function at all is based on a pay-it-forward model. When a TinySuperhero is nominated for a cape, we then make them a personalized crowd-funding tool. All we ask is that they share it. $50 funds their own cape, and any money raised over that helps other TinySuperheroes get a cape on the waiting list. Every child nominated gets a cape – no matter what. As of right now, about 30% of people will raise funds, but they raise enough to support 100% of the Squad! 

We recognize that we are all in different places in our lives. Sometimes we are able to give a little more, and at other times we might need a little help. So, we can’t dedicate the extra money raised over to a specific patch for your cape because then our whole business model would fall through, and we wouldn’t have a Cape Program or a Patches Program at all! Not to mention, logistically, this would be pretty hard.

We do, however, offer a new FREE patch every month for all our TinySuperheroes. This patch is based on a different superpower and activity that we all work on as a Squad each month. You can learn more about that here:

Thank you for taking the time to read this to better understand how this all works. We are always looking for clearer ways to explain how our process works. We know it can be kind of confusing because not too many other companies function like us!

In the end, THANK YOU. Thank you for supporting us and for believing in what we do. We couldn’t do it without you.

TinyLetter from Robyn

TinyLetter from Robyn ❤️❤️❤️

If I ever felt confident in my grasp of what is going on with this pandemic, all of that confidence is gone. I’m not sure what the rules are, not sure what the risks really are, not sure if we’re at the beginning, middle of end of the Corona Virus’ impact on real lives.
It seems like staying home is still the safest option, which is increasingly difficult and confusing as counties and cities start opening back up. Everything I read makes me think we are not at a point where we should be opening up, but we’re opening up.
Do we have babysitters? Can my mom come over? If preschool opens, do I send Sheldon? If camps open, do we send the boys? What if we don’t send them but don’t get our money back?
Is our team at TinySuperheroes going to be separated for weeks…months…??? What about the amazing people who volunteer their time to help us, when is it safe to welcome them back?
The ambiguity increases my anxiety exponentially and is all hard to cope with. It feels like the stakes are too high for the decisions that we are all trying to make for ourselves and our families. I wish we were united in our approach so that I could stop second guessing every move I make.
I don’t have any answers.
But two days ago I was cleaning the kitchen (feels like that’s all we do these days) and I looked out the window and there were our three boys, digging in the mud for worms.
***I want to be clear that this same day they had spent approximately 2,304 hours on screens, so if this is making you feel guilty, please do not let it.***
This was just a moment – a very special one – where I knew our extra time at home was something remarkable.
In the midst of the pain and suffering that MILLIONS of people in our country are feeling right now, there are glimpses of hope that in the midst of great anxiety and unknown, we are still ok.

A tiny note from Robyn 4.30.20

TinyLetter from Robyn 🥰❤️

Today’s lessons brought to you by Netflix.

I never wanted to be a teacher. Growing up, my sister and I played school with our cousins all the time. My sister was the teacher, we were the students and Scott was the class dog. Of the 6 of us, 2 went on to become actual teachers…I was not one of them.

I am grateful that (for the most part) we are treating the Corona Virus with the respect it requires and to that regard, I am grateful that schools were cancelled. But I never planned for this.

I must interject here that my husband, Joe, has taken the large majority of the homeschooling duties. It would be easy to interpret this letter in a way that seems I have been carrying the load of homeschooling, but that is not truth. What is true is that the minority of weight of homeschooling that I am in charge of, is really freaking heavy.

So today was my day to be home all day with the boys. (Since we have an empty office, Joe and I have been taking turns spending days there.)

I went to bed last night with the intention of being present with the boys today. Recognizing that it is unrealistic for me to work and homeschool them (while being present), I cognitively told myself that I would not be working during the day today. And without too many fantasies, I actually thought that I was ready to have a good day solo with the boys.

And then I woke up. Sigh.

I started off surprisingly strong. I actually took a shower, put in a load of laundry and cleaned up the house in preparation for its eminent destruction. I managed to get it clean enough to confidently turn the robot vacuum on who normally simply turns himself off upon hitting the first hot wheel because its job is apparently not to actually clean my house.

By 9:00am Sheldon is already on his 3rd episode of Micky Mouse Club House, Rory is fully immersed in the Nintendo Switch and Milo has already convinced me that he needs a sick day. He did. He convinced me. But he is not sick.

With Kindergarten off my plate, you’d think managing Rory’s 2nd grade load would be totally manageable – and it would have been – if my computer hadn’t magically opened itself where 273 text messages, 46 slack messages, a bajillion emails and a long to-do list started pulling me in with their impressive magnetic forces.

I made cinnamon rolls for breakfast because we are out of bread and there’s only enough milk for about 1 bowl of cereal, and I daydream about going to the store tonight by myself to restock. Just the thought of walking the aisles, mask and all, gives me enough hope to proceed with the day.

Somehow many hours pass. It seems like Rory did enough school work to rid my guilt for today and at least now Sheldon is playing with the marble set while watching Mickey Mouse Clubhouse – because that is better….I think.

It’s 1pm when I realize I need to figure out what we’ll eat for lunch. Only 1/3 of the boys have changed clothes today (which is actually a decent percentage around here these days).

By 2:30 I’m begging Sheldon to take a nap. It’s a big decision – to wait out the hour of resistance before he falls asleep with the hope of lying down just for a bit myself…or foregoing the nap knowing you’re preparing to deal with a monster around 5pm with a possible earlier bedtime.. I usually opt for the first option – any chance of laying down myself feels worth the risk. It failed so now we’ve endured an hour of screaming and will have a monster on our hands before dinner.

Joe came home and while I tried to minimize my desperation, I basically gave him a high five on my way out the door to head to the store. The 5 minute drive there with the windows down was heavenly. And while 2 months ago I never would have imagined that strolling the grocery store would make me feel human again, it did tonight.

I know that I am blessed to have these 3 amazing kids.

I know that this season of life won’t last forever and that we might even miss it someday.

I know that single parents, working out-of-the-house parents, and many others have an even more impossible path to navigate.

I know that the stress of my juggling act is nothing compared to our neighbors fighting for their lives.

And somehow, while all of that is true, I have learned over time that it is ok to say that this is hard. Because this is hard.

Whatever version of survival you are living right now, whether it feels quiet and peaceful or hectic and tornado-like. Whether you are a nurse caring for someone on a ventilator or if you know the person on the ventilator. Wherever you land right now, just know that it is ok to be right where you are.

If this feels hard, it’s ok to say it. I assure you that my kids are probably having more screen time than yours and that when this is over our house will probably need to be gutted, so if you ever need a pep talk, I’m a good person to reach out to (though as stated earlier, I’m struggling to keep up with messages….).

But for today, I am here and you are here. And here is a good place to be, not matter where it is.

You aren’t alone. Keep putting one foot in front of the other and consider the very survival of another day in the twilight zone a success.

Sending you all of my love,

Robyn (Please send help.)

Super Jett

365 days ago, Jett’s journey was clearly coming very close to the end. I received a call at midnight saying, ‘Jett’s blood has came back very abnormal. His lactate level was dangerously high. I would come in as soon as you can.’

​As I began crying, I hung up the phone and woke up AJ. I said, ‘Jett’s in trouble. I have to go right now.’ As I rushed to the hospital, I prayed so hard. I arrived to his room. His doors were wide open and everyone was there. I walked over and Jett was as white as the walls. I walked over to him and so peacefully placed my hand on his head. I whispered in his ear, ‘Mommy is here. It’s going to be okay baby, you can’t give up on me now. You have fought so hard please keep going.’ The nurse came over to me and asked if I want to go to the waiting room. I said, ‘Absolutely not. This is where I need to be, no matter how bad it gets.’

I walked to his doorway, and I watched the doctors and nurses work on his little body. I watched his monitor as his heart rate dropped. The doctors yelled for a code cart. Everyone was quiet as we watched his monitor, and then doctors began yelling orders. Jett’s heart rate dropped to 30 as a nurse began chest compressions. 

I sat there praying out loud during the chaos. I begged God not to take him yet. I cried and cried, thinking this can’t be how his fight ends. A nurse paged a chaplain for immediate help to give me. We called his cardiologists and surgeons. We were going to place him on ecmo and the doctors said, “No, absolutely don’t do that yet. If he goes on now, he may never come off.’

We got Jett stabilized, and I remember after it all, cleaning his blood off of his crib. His room was a mess from the chaos. All I wanted to do was clean it and get rid of the evidence of what just happened. I bathed Jett and combed his hair so perfectly over. I thanked God for saving him again, and I asked him to continue to give me more time. 

​​The next morning, the doctors expressed how it’s not looking good. His heart function was even worse. I looked at them, stood tall wiped my tears and said, “He will be okay. He will make it. Don’t give up.”

Even now 365 days later, I still remember every single thing about that night. I remember the noises, the doctors, nurses. I remember who did what to save him, I remember the smell, I remember the chair I sat on, I remember the way Jett looked, I remember the sound his monitor made as I watched his heart rate dropped. It’s so very clear, and I believe it always will be. This is something that can never be erased from a mother’s mind. Thanks to all his doctors and nurses who didn’t give up on my son. You worked and worked on his little body when I’m sure you wanted to just cry with me. Thank you. You believed in my son, and you showered me with many hugs and prayers afterwards. You all will always be a part of my family. We love you.

But tonight I will dance with my hero and hold him extra tight. We are home now, and we are enjoying every single second God continues to provide to our family. Today and the days to come are going to be the hardest for my sons donor family. My heart aches for them. They are reminded of their final days with their precious baby. Say many prayers for them, as they need comfort, love and support to get through this. I hope they can feel my love I give them every single day. I have never stopped praying for them, everyday, every second I’m thinking of them. Every time I look at my son, I am thinking of his donor. The baby who lives in my son, the one who is our hero. The one who saved my son’s life.” 
-Super Mom Suzi Leahy

Where do the proceeds go?

The proceeds for the #WeRiseUp Campaign help fuel our TinySuperheroes as they continuously exude hope in their daily battles. TinySuperheroes starts with a cape, but the cape is just the beginning of the journey. We provide many free services to help support the members of our community, and your money will go directly towards these programs. Check them out!

Every month, our TinySuperheroes unlock a new superpower by completing a mission. For each mission that is completed, a new patch is earned for their cape, at no cost to the family! With 3,000 Squad members participating each month, your proceeds help us be a positive impact in their lives by being a constant in their mailbox every month!

We want to be there for our TinySuperheroes and their families from the moment they are diagnosed until the very end. When a TinySuperhero gains their wings, they join our Angel Squad. We then provide the family with a patch and a card. Then every year on the anniversary of their death, we send an “angel seed” to the family. These are made by Seeds of Happiness, and they are a way to let the families know that their TinySuperhero is not forgotten. Your proceeds will help us continue to provide support to these families.

We provide a support group for the parents of our TinySuperheroes. There are over 25,000 active members! Our members are excruciatingly open and honest, and we believe this is one of the most powerful programs we offer for our families. Supplies for craft time live, journaling, and constant moderation are just of the few of the many aspects that are required to make this support group possible!

So, are you ready to Rise Up with our TinySuperheroes Squad and start your campaign?

Super Thomas Beats Cancer!

Three and a half years ago Super Thomas’s parents heard the worst words a parent could possibly hear, “Your child has cancer.” That is when the great battle of Super Thomas vs. Leukemia began. And, we are SO PROUD to announce that Super Thomas has officially beat cancer! Here he is proudly ringing the bell (with his cape on!)

Follow Super Thomas and updates on his incredible journey here.

Puerto Rico TinySuperheroes

I have to tell you an amazing story, and it involves new TinySuperheroes, in Puerto Rico!

Our amazing crew member Maggie has been spending some time working remotely from Puerto Rico! We were happy to support her venture as I am the first to know that some new mental and physical space (along with the ocean) are necessary for the soul to thrive.

Since Maggie was going to be there for a few weeks (and I tend to have a knack for ‘creating opportunities’ when beaches are involved) I reached out to some members of an organization I belong to in St. Louis which has chapters around the world. I was humbled by their immediate response and open arms for us to deliver capes to the children in their hospitals! The love and enthusiasm that many have shown us in Puerto Rico has been inspiring.

So yesterday I caught a flight, Joe embraced running an all boys house, and today Maggie and I had the true privilege of delivering capes to children at two local hospitals here. With their permission, I’d love to share a few of their stories with you.

First we visited Ashford Presbyterian Hospital in San Juan. This is a general hospital so had a low kid-count today, but for me, being able to actually spend time with families is equally valuable as delivering a lot of capes, so we embraced it.

Maggie speaks Spanish. I kind of speak Spanish. About 30 seconds into meeting Super Alberto (above) he told me I should just speak English to him! hahaha

Anyways, what I LOVED about meeting Super Alberto is that he is a typical 14 year old boy, so the idea of some random stranger giving him a superhero cape seemed silly at best. It took a minute, but by the end of my time with him, we were both smiling!

We also got to visit the sweet babies in their NICU and meet the cutest little girl! I’ll include their pictures in a gallery at the end!

Next we went to Hospital Pediátrico Universidad also in San Juan. It is so amazing to see hospitals outside of the systems I am used to. We were able to deliver the remaining 20 capes that we brought with us for the trip and met some incredible kids…some of which I did have to humbly speak to in my rough Spanish!

One of the highlights was Super Alexander. He is 19 years old. A volunteer was with us and went into each room to see if they’d like us to come in before we did. Alexander was in the process of getting blood drawn and he was nervous, so he didn’t think he deserved a cape! He let us in anyways and we loved him the moment we met him! He’s just the sweetest guy, but does not enjoy getting his blood drawn, so I took the opportunity to distract him and tell him how brave TinySuperheroes are for blood draws! He is at University studying the culinary arts and someday I’m going to have him cook for me!

Unlike these teenagers, I wasn’t able to win the favor of this sweet girl, but goodness did she win my heart!

The staff at the Children’s Hospital was so excited about what happened today that they asked us to come back in May to deliver capes to the entire hospital! I can’t tell you what their warm welcome means to us and we would be honored to do so, and that’s the plan! If you’re interested in helping make that happen, click here.

I wish I could put you all into a suitcase and bring you on these adventures with me, but I hope you trust when I tell you that I carry all of you with me when I go. Above all, thank you for helping us empower these incredible kids and families. It may look like a cape, but it is much, much more.