Super Colton

February is marked by Valentine’s Day decorations going up. Paper hearts decorate the walls. For some families, this month is a reminder of the challenges their TinySuperheroes with heart defects face…but also of all the love they get and give. Super Mom Shannon brings us the story of her Valentine, Super Colton:

“So many people think that February is just Valentine’s month,” says Shannon. “I thought that once, too. Now I know it as heart month. It’s coming up fast, and I’m not sure I’m ready. So far,

I’ve kept most of my fears to myself. Now, I am opening up about what it is really like having a child with CHD (Congenital Heart Defects) and all the trauma involved. I’m beyond grateful that despite Super Colton’s complex heart defect, he’s done so well from the start. But that doesn’t take away the pain and fear of the unknown and of what the future might bring for us. 

“Although most people know about my son having a CHD, very few really know what that really means. We’ve always tried to brush it off or just be matter-of-fact as a way to protect ourselves from breaking down, but I think it’s time to share our story. Super Colton definitely came into this world with a bang. He was unexpected at our age and with the timing of the pandemic. He was due in September. In August, we arrived at an appointment for an ultrasound and then a doctor’s appointment. What they found made them decide to induce. Super Colton, however, did not make his appearance until 11:03 p.m. the next day via emergency C-section. We were in the hospital for a week due to his jaundice and eating issues. We found out then that my blood fights off my husband’s blood due to one of the antibodies he carries, so our little boy is truly a miracle. 

“Then, a week after he was born, our world started to go downhill. I had been told Super Colton had a hole in his heart. Due to Covid, I got that news all alone; my husband had to sit in the car waiting. Doctors thought Super Colton had TOF (Tetralogy of Fallot). Turns out, Super Colton actually had a large VSD (Ventricular Septal Defect), so the next few months were spent trying to get him to grow for surgery. We underwent several hospital stays to get fluid off his lungs. During one of the last stays, they decided to put in an NG (Nasosgastric) tube for feeding to help him grow for surgery. 

“Super Colton had this surgery on December 18, 2020, at Boston Children’s Hospital. That’s where we also found out he has a small ASD. Our little Heart Warrior was in the hospital for 10 days. He still has a small VSD near where one end of the patch is, but our lil’ boy is slowly getting better. We are still dealing with feeding issues, but so far he is growing, and that’s all that matters.”

Incredible, Super Colton! Super thanks to Shannon for sharing this moving story with us today. It’s clear that her TinySuperhero possesses the power of love. The TSH community is certain that while February may be Super Colton’s month, this is also going to be his year! Go, Super Colton! 

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